Link between Quality of Life and Self-Esteem in Tunisian Women with Systemic Lupus Erythematosus

Résumé

Introduction Systemic lupus erythematosus (SLE) is a chronic, multisystemic disease that can significantly impact the quality of life (QoL) and self-esteem of lupus patients. Objectives To study the quality of life of female patients with SLE and its relationship with self-esteem. Methods A descriptive and analytical cross-sectional study was conducted on 50 female patients with SLE followed at the Department of Internal Medicine at Hédi Chaker Hospital, Sfax, Tunisia, from September to November 2023. We used: - A socio-demographic and clinical data sheet and the Lupus QoL questionnaire to assess the quality of life of lupus patients - The Rosenberg Self-Esteem Scale Results - The mean age of patients was 43.46 ± 11 years. 56% had a medical or surgical history. - The mean age of SLE diagnosis was 33.54 years with a mean number of flares of 2.94 years ± 2.473 - According to the Lupus QoL questionnaire: the mean global score was 59.76± 23.496 [8.8-91.98]. The mean scores in the different domains were: physical health = 58.35 ± 32.571 [0-97], pain = 53.013 ± 33.896 [0-100], planning= 69.33 ± 32.741 [0-100], feeling of being a burden = 71.36 ± 32.694 [0-100], emotional health = 57.71 ± 26.67 [0-95.83], body image = 72.9 ± 24.6 [10-100], fatigue = 40.93 ± 24.462 [0-87.5]. - According to the Rosenberg Scale: a mean global score of 28.28 ± 8.572 [2-40]. Very low to low self-esteem was found in 50% of patients. - Statistically significant correlations between low scores in the domains of quality of life and low to very low self-esteem were found: - Physical health: P = 0.000 - Planning: P = 0.042 - Pain: P = 0.002 - Emotional health: P = 0.004 - Fatigue: P = 0.017 - Body image: P = 0.007 - Global Lupus QoL: P = 0.001 Conclusions Our results indicate that SLE can impair the QoL of lupus patients in various domains. The same is true for self-esteem. The positive relationship between the two parameters encourages a better understanding of the factors associated with each and highlights the importance of a global approach to improve the management of female lupus patients. Disclosure of Interest None Declared

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