RESILIENCE CHARACTERISTICS OF FAMILIES WITH CHILDREN WITH SEVERE OR PROFOUND INTELLECTUAL DISABILITY

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The aim of this study was to explore family characteristics and resources that assisted families to adapt after their children had been diagnosed with severe or profound intellectual disability. A qualitative research approach with a cross-sectional design was used, as the study was focused on participants’ experiences. It was found that spiritual resources and reformulation of the crisis helped families to reframe their experiences with a more positive outlook. Social support from the family networks, friends and the community, and positive family characteristics, such as perseverance and humour, also contributed to family adaptation and well-being. Good planning regarding daily activities, as well as for their children's future, was also deemed important.

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