Lived experience of people on anti-retro viral therapy in the context of covid-19: aphenomenological study

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Abstract Introduction: People living with human immune virus (HIV) are confronting multiple psychosocial and economic issues influenced by the illness. People on anti-retro viral drugs (ART) were at risk for discontinuation of medications during corona viral disease-2019 (COVID-19) pandemic. COVID-19 outbreak made people living with HIV (PLWH) to experience critical challenges and barriers to optimal care. The experience of people living with HIV such as stigma and discrimination, economic problem, psycho social problem before the emergency of COVID-19 was studied but there is lack of understanding on the lived experience of people living with HIV in the context of COVID-19 in Ethiopia particularly in Tach Gayint. This study aimed to explore the lived experience of people on ART in context of COVID-19 in Tach Gayint district. Methods and materials: Phenomenological study design was conducted with 16 study participants from March 12-April 12/2021. Data were collected using in-depth interview using interview guide and digital recorder. The investigator took note in addition to digital record. Interviews were transcribed word for word and translated conceptually. Analysis followed Reading of transcriptions, develop and apply coding, displaying data, data reduction and interpretation. Atlas.ti-7 software was used to facilitate analysis. The quality of data was assured by the principles of credibility, dependability, conformability and transferability. Result: The study explored psychological experience, change in social interaction, and economic experience and ART drug interruption as the main themes including other sub-themes. Most participants perceived the severity of COVID-19 on them. Lack of participation in social activities due to fear of contracting and dying and loss of income were experienced by the participants. This extreme fear pushed some participants to interrupt their daily ART intake especially during lock down period. Personal, familial and community context contributed for these distressing experiences. Conclusion and recommendation: This study reported participants’ psychosocial, economic experiences including ART drug interruptions. It is recommended for the government to design policies and interventions to alleviate their personal, household and community problems which were the caused for the mentioned hostile experiences.

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