Why the mycetoma patients are still neglected

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In 2012, pharmaceutical companies, donors, endemic countries, and nongovernment organisations met in London and signed the London Declaration on Neglected Tropical Diseases.Together, they committed to controlling, eliminating or eradicating ten diseases by 2020, and improving the lives of over a billion people.Great progress has been made, and the declaration has achieved many of its goals [1].Mycetoma was recognised as a neglected tropical disease (NTD) by the World Health Assembly in 2016 [2].GlobalAU : Pleasecheckandconfirmthattheedittothese measures have been initiated to assess the current policies and practices worldwide; international consultation to identify priority areas of work and a Global Mycetoma Working Group were established [3].The 17 Sustainable Development Goals (SDGs) of the 2030 Agenda for Sustainable Development were adopted by world leaders in 2015.They build on the success of the Millennium Development Goals and aim to go further to end all forms of poverty, calling for action by all countries to promote prosperity while protecting the planet.The third goal is the Good Health and Well-Being [3].The Sixth International Conference on Mycetoma and the First International Training Workshop on Mycetoma were organised in Khartoum, Sudan, by WHO and the Mycetoma Research Centre.The conference delegates have endorsed a "Call for action" urging the global community to work together with multilateral agencies, partners, research institutions, and pharmaceutical companies to address the devastating consequences of this disease [3].WHO had launched the Roadmap on NTDs, setting out the next decade of action against NTDs, closely aligned with the 2030 SDGs.The roadmap calls for global action and response to prevent, control, eliminate, or eradicate 20 diseases and disease groups and cross-cutting targets associated with the SDGs.The Kigali Summits on Neglected Tropical Diseases and Malaria, 2020 and 2022, were convened in Kigali and attended by some leading global health voices, world leaders, leading WHO figures, humanitarians, scientific experts, global influencers, and community champions.The Summits issued Calls to Action on the actions needed to end malaria and NTDs.Many delegates had signed the Kigali Declaration and committed to raising funds to accelerate the WHO/NTD 2030 roadmap progress [4].Despite all this massive international recognition of the NTDs, mycetoma, which is the most neglected of the neglected diseases, had meagre attention.Still, only a few of the research funding bodies had included mycetoma in their priority funding list, few international research consortia on mycetoma were established, it is not on many countries' health priority agenda, not a reported disease yet, and no new drug for mycetoma is in the pipeline.

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